As part of an international collaboration on Ataxia-Telangiectasia (AT), a rare genetic disorder, Prof. Thomas Crawford from Johns Hopkins University and Dr. Claudio M. de Gusmao from Harvard University visited the Koç University Translational Medicine Research Center (KUTTAM) and the Rare Diseases Research Laboratory (NDAL) in Istanbul between February 4 - 7, 2025.
During their visit, the two specialists conducted in-depth clinical evaluations of five children in Turkey who may benefit from antisense oligonucleotide (ASO) therapy. The Boston-based Dr. Yu also joined the meetings virtually. AT Association Chair, attorney Güneş Uyar, was present at the sessions, which were held in collaboration with NDAL's research team.
These meetings at NDAL offered a significant opportunity to share clinical knowledge and advance the process of making ASO therapy accessible in Turkey. The next planned step is to initiate official consultations with the Ministry of Health regarding the necessary regulations.
Two exhibitions currently on view at Pera Museum—"Much Is to Be Done", focusing on Samih Rifat, and Dancing with the Moon, featuring Marcel Dzama—are accompanied by two comprehensive publications that enrich and deepen the exhibition experience beyond the visual encounter.
Suna’s Daughters has partnered with UNICEF Türkiye to strengthen safe spaces for adolescent girls. Through a cooperation protocol signed by the two organizations, the initiative aims to expand access to physical and digital environments where girls can feel safe, valued, and empowered.
As part of its 20th-anniversary celebrations, the Suna and İnan Kıraç Foundation Pera Museum proudly presents two significant exhibitions: MARCEL DZAMA: Dancing with the Moon - With a Little Help From His Friend Raymond Pettibon and SAMİH RİFAT: "Much Is to Be Done" - photographs, films, drawings, poems, notebooks, books, and music… These exhibitions invite visitors to explore the distinct artistic and intellectual worlds of Marcel Dzama and Samih Rifat, offering a captivating journey through contemporary art and cultural heritage.