From September 16-18, 2024, Professor Henry Houlden and Dr Francesca Magrinelli from University College London (UCL) visited NDAL for an academic meeting and knowledge exchange. Over three intensive days, the visiting professors examined a total of 18 families.
The first group of families included cases with known genetic causes, leading to functional analysis to better understand disease mechanisms. From the second day onward, families with multiple affected members and clear genetic inheritance—yet unresolved despite current methodologies—were examined, and Long Read Sequencing (LRS) was proposed for further study.
In addition to neurological evaluations, the team addressed all inquiries from the families and collected various samples for further research. Turkish clinicians working with the patients were also present during parts of the meetings. The highly productive discussions and collaborations provided an excellent model for future engagements.
Suna and İnan Kıraç Foundation, Pera Museum invites children to a vibrant space of discovery through art during the summer break. Scheduled to take place between July 22 and 31, 2025, the Summer Holiday Workshops program brings together children aged 4 to 12 with creativity, imagination, and hands-on learning.
In the Istanbul edition of Suna’nın Kızları Summer Institute, girls engaged with art, history, technology, and creativity. Enriched with special guided tours of collections and temporary exhibitions, VR experiences, and collective workshops, the program offered an inspiring space for learning and sharing.
Suna and İnan Kıraç Foundation Pera Museum has received the Gold Award in the “Museums” category of the SocialBrands Data Analytics Section at Brandverse Awards 2025, organized in collaboration with Marketing Türkiye and BoomSonar.